Lynch syndrome: the national project

Friday, January 28, 2022 16:30 - 17:00

The Lynch syndrome quality improvement pathway (QIP): work so far and it’s how it will be applied nationally

The Lynch Syndrome QIP has been developed in line with the NICE guidelines to ensure an effective and fast diagnostic pathway from diagnosis of colorectal cancer to diagnosis of LS. The aims are:

1.    Meet the NHS Long Term Plan ambition to diagnose cancer at an early stage. If all people with colorectal cancer were tested for LS and enrolled into appropriate surveillance pathways, by 2028 we would expect up to 380 more colorectal cancers to be diagnosed early

2.    Increase the identification and diagnosis of LS. This is a top priority, as it is estimated that we only know about 5% of the LS cases. It is estimated that this increased identification and diagnosis of LS could save over 300 lives annually in England.

3.    Improve cancer prevention through identification of individuals at risk by genetic testing of unaffected family members through cascade testing. Cost effective treatments and services are available to help people with LS manage and reduce their risk.

4.    Implementing stratified medicine, including optimal treatment selection and surveillance packages, to prevent cancer recurrence

With this strategy we will maximise opportunities to save the lives of patients with LS. The QIP has successfully been implemented in the RM Partners allied Hospitals in London. The QIP has been launched nationally and we would like to show our work so far, the benefits to patients and the service, and the training and support available to health care professionals.

Laura Monje-Garcia, Nurse Practitioner and Project Manager, St Mark’s Centre for Familial Intestinal Cancer, London North West University Healthcare NHS Trust